Ultimate Appreciation: RP Epilepsy Foundation Volunteers’ Highlights
Volunteers are the backbone of community care. In every program, their steady support sustains clinics, outreach, and patient assistance. This update from the RP Epilepsy Foundation surveys recent progress and expresses gratitude for all who give their time. It also outlines upcoming family events and milestones in medical education. In their October 2024 update, the […]
Empowering the Journey to Adulthood: Essential Highlights from the RP Epilepsy Foundation
Navigating the transition from pediatric to adult care can be a monumental phase of life. Moreover, for Adulthood, Epilepsy, it is especially challenging for those with complex neurological conditions. In their July 2026 update, the RP Epilepsy Foundation shared inspiring stories, recognition, and practical tips. The tips focus on empowering independence and fostering safety during […]
From Genes to Care: A Practical Guide
April 2026 We dedicate this newsletter to Ivan (pictured with his mother and sister) and other adults with rare genetic diseases (Epilepsy). Ivan is 18 years old with SYNGAP1 pathogenic gene related-learning disability, Epilepsy, and autism. Additionally, his mother and siblings assist him with dressing, eating and toilet needs. His parents miss work and bring […]