April 2026
We dedicate this newsletter to Ivan (pictured with his mother and sister) and other adults with rare genetic diseases (Epilepsy).
Ivan is 18 years old with SYNGAP1 pathogenic gene related-learning disability, Epilepsy, and autism.
Additionally, his mother and siblings assist him with dressing, eating and toilet needs.
His parents miss work and bring him regularly to R. P. Epilepsy Clinic and therapy appointments.
R. P. Epilepsy Clinic supports families like Ivan and is engaged in providing counseling, seizure safety, and medications. We are collecting funds to provide him with advanced augmentative technology devices.
A Clinic That Grows With You
RPEF provides consistent, specialized neurological care that continues across adolescence and into adulthood. The clinic maintains longitudinal oversight rather than fragmenting services.
Additionally, we monitor clinical changes, adjust treatment plans, and ensure stability as patients grow and their needs evolve.
Expanding Vocational Opportunities
Health and independence are closely linked to opportunity. REF supports young adults by integrating discussions of education, skill development, and employment into care-helping individuals identify pathways that align with their strengths and long-term goals
Promoting Safety and Developmental Readiness
While many young adults are transitioning into independence, developmental readiness varies. RPEF supports this stage by reinforcing safety, decision-making, and daily living skills-ensuring that increasing autonomy is matched with appropriate guidance and clinical support.
Aligning Care With Individual Needs
Every patient’s trajectory is different. REF works with individuals and families to determine whether care should continue at the clinic. Additionally, REF helps plan a transition to additional services. This approach ensures care remains continuous, intentional, and tailored over time.
R P Epilepsy Foundation, 501c(3) Tax ID 93-4347938
Sumit Verma, MD | 3774 Lavista Rd, Suite 100, Tucker, Georgia, 30084